Gabitril

Liczba wypowiedzi w tym wątku: 22

11. Data: 2007-05-06 18:12:34

Temat: Re: Gabitril
Od: Marek Bieniek <a...@s...re.invalid> szukaj wiadomości tego autora

On Sun, 06 May 2007 15:08:31 +0200, Angels wrote:

> Kiedy mialem 6.5 roku i 10 h i brak bylo pracy serca i krazenia,
> oddechu, nastepnie mialem 2-3 ataki w ciagu ok 5 lat (nie wiem czy
> przez zle dobrane leki czy jak. Bralem kwas walproinowy ktory nie
> dzialal, a teraz dziala- wiec czy wtedy byl zle dobrany lek czy inny
> powod, przyczyna?).

Padaczka potrafi ewoluować, lekowrażliwość może się też zmieniać z
czasem.
Są też takie postaci padaczki, gdzie kwas walproinowy nie działa a
priori.

> [...] A na moj typ epi.? I w takim razie po moim opisie czy
> mozna stwierdzic ze jest ona wyleczalna czy nie?

Moim zdaniem nie można tego stwierdzić na tej podstawie, a na pewno nie
podejmę się tego ja. Zresztą poza może jednym typem padaczki dziecięcej,
w którym rokowanie zawsze jest dobre, nikt rozsądny nie podejmie się
takich spekulacji.

>>Stan padaczkowy stanowi zagro?enie ?ycia, w jego przebiegu mo?e doj?? na
>>przyk?ad do bezdechu - a cz?owiek, który si? dusi, psuje si? ca?y...
> A jak wtedy (w wieku 6,5 roku gdy te 10 godz byl brak pracy serca itd)
> i nastapil zanik (nie pamietam lewej czy prawej) czesci mozgu, to moze
> miec lub ma jakies teraz objawy to, uszkodzenia w zachowaniu itd.? Czy
> nazwalby Pan to zanikiem czesci mozgu czy jak?

Raczej mianem encefalopatii niedotlenieniowej, ale to kwestia dobrania
nazewnictwa jedynie.

>>> jakie sa skutki zaniku polkuli mozgu?
>>Ja bym raczej zada? pytanie o przyczyny...
> A jakie moglyby byc przyczyny ogolnie oraz w moim przypadku? :)

A skąd ja mam wiedzieć? :)

> Czy gdy w eeg nie ma napadow, to mozna powiedziec o dzialaniu
> poprawnym lekow czy tez czym by Pan nazwal ta poprawe zapisu?

W EEG z reguły nie ma napadów, także u chorego na padaczkę, chyba że
zapisze się EEG w trakcie napadu. Poprawa zapisu EEG świadczy pośrednio
o właściwym leczeniu, ale o tym świadczy przede wszystkim efekt
kliniczny, czyli brak lub zmniejszenie ilości napadów.
EEG jest tylko badaniem dodatkowym!

>>Lekarze s? równie? po to, ?eby ich pyta?. Nie bój si? tego.
> Wiesz Marku, pytalem, ale cos czuje ze nie do konca mi mowi moj lekarz
> (nawet juz kumpel) prawde. Nie mowi wszystko, a po jakims czasie lub
> gdy na sile wyciagam od niego odpowiedz na pewne pytania to mowi
> wiecej lub jak jest dokladnie.

To wyciągaj dalej. On na pewno jest w Twojej sprawie znacznie bardziej
kompetentną osobą niż ja.

m.
--
Pozdrawiam,
Marek Bieniek (mbieniek na epic pl)
Problem nie w nauce, lecz w tym, jaki ludzie robią z niej użytek.
/Wilder Penfield/

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12. Data: 2007-05-08 17:06:46

Temat: Re: Gabitril
Od: Angels <m...@d...op.pl> szukaj wiadomości tego autora

On 6 May 2007 08:32:10 -0700, a...@y...com wrote:

>On 6 Maj, 15:08, Angels <m...@d...op.pl> wrote:
>> On Mon, 30 Apr 2007 15:44:58 +0200, Marek Bieniek
>>
>>
>>
>>
>>
>> <a...@s...re.invalid> wrote:
>> >On Fri, 27 Apr 2007 16:09:01 +0200, Angels wrote:
>>
>> >> Jak Pan wie bralem rozne leki, i wlasnie od pewnego czasu lekarz mi
>> >> mowil ale dopiero na moje zapytania czy jest to lekooporna. mam
>> >> wrazenie tak jakby mi wszystkiego nie mowil.
>>
>> >To pewnie dlatego, ?e ten termin dla pacjenta niekoniecznie musi znaczy?
>> >cokolwiek, a u?ywa si? go przede wszystkim w kontekscie
>> >farmakoekonomicznym (czyli jako uzasadnienia refundacji leku).
>>
>> >> A czy w wieku 28 lat, jak pierwszy napad byl gdy mialem 6,5 roku to
>> >> jest mozliwosc wyleczenia padaczki czy juz nie?
>>
>> >To zale?y od zespo?u padaczkowego. S? postaci padaczki o pocz?tku w
>> >dzieci?stwie, które na leki reaguj? dobrze, ale wymagaj? leczenia do
>> >ko?ca ?ycia.
>>
>> Kiedy mialem 6.5 roku i 10 h i brak bylo pracy serca i krazenia,
>> oddechu, nastepnie mialem 2-3 ataki w ciagu ok 5 lat (nie wiem czy
>> przez zle dobrane leki czy jak. Bralem kwas walproinowy ktory nie
>> dzialal, a teraz dziala- wiec czy wtedy byl zle dobrany lek czy inny
>> powod, przyczyna?). Lekarz najpierw myslal ze mam czesciowa, potem sie
>> okazalo ze jednak uogolniona pierwotnie. Myslal (a moze tylko tak
>> mowil) ze minie gdy skonczy sie okres dojrzewania. A jednak nie udalo
>> sie. Teraz przed poprawa leku mowil ze raczej do konca bede bral leki,
>> teraz tylko (a moze az) wspomina o lekoopornej. Uwaza on ze poprawa
>> zapisu eeg jest przez dobranie dobrych lekow oraz ze (lamitrygina i
>> kwas walproinowy) sa uspokajajace, prawda? Czy leki spokajajace maja
>> wplyw na napady? A na moj typ epi.? I w takim razie po moim opisie czy
>> mozna stwierdzic ze jest ona wyleczalna czy nie?>> Kazdy Status epilepticus
podobno uszkadza coraz w wiekszym stopniu
>> >> mozg. zgadza sie?
>>
>> >Pewnie.
>>
>> >> Jesli tak to ktore czesci?
>>
>> >Stan padaczkowy stanowi zagro?enie ?ycia, w jego przebiegu mo?e doj?? na
>> >przyk?ad do bezdechu - a cz?owiek, który si? dusi, psuje si? ca?y...
>>
>> A jak wtedy (w wieku 6,5 roku gdy te 10 godz byl brak pracy serca itd)
>> i nastapil zanik (nie pamietam lewej czy prawej) czesci mozgu, to moze
>> miec lub ma jakies teraz objawy to, uszkodzenia w zachowaniu itd.? Czy
>> nazwalby Pan to zanikiem czesci mozgu czy jak?>> Napad petit mal lub np
>> >> proste tez uszkodzaja?
>>
>> >To nie do ko?ca tak. Ognisko padaczkorodne niezale?nie od tego czy
>> >napady s?, czy nie mo?e podlega? (i podlega) ewolucji, a wyst?powanie
>> >napadów mo?e stanowi? tego przejaw. Leki wp?ywaj? na tak? ewolucj?, a
>> >przynajmniej takiego stanowiska si? kiedy? uczy?em:)
>>
>> >> jakie sa skutki zaniku polkuli mozgu?
>>
>> >Ja bym raczej zada? pytanie o przyczyny...
>>
>> A jakie moglyby byc przyczyny ogolnie oraz w moim przypadku? :)>>>Na przyk?ad tzw.
napady czo?owe, gdzie EEG spoczynkowe bardzo cz?sto
>> >>>jest wzgl?dnie prawid?owe.
>> >> W skroniowej tez?
>>
>> >Raczej nie.
>>
>> Czy gdy w eeg nie ma napadow, to mozna powiedziec o dzialaniu
>> poprawnym lekow czy tez czym by Pan nazwal ta poprawe zapisu?
>>
>>
>>
>> >>>Poza tym nie wiedz?c jak wygl?da?y wczesniejsze zapisy nie powinienem
>> >>>w?asciwie tak pisa?.
>> >[...]
>> >> Prosilbym o wyjasnienie jeszcze tych wynikow oraz w porownaniu z
>> >> tymostatnim. Teraz Pan juz na wczesniejsze :)
>>
>> >Zapis na pewno si? poprawi?.
>>
>> >> Mam tez prosbe, czy moglby Pan zinterpretowac wynik TK mozgu.
>> >> Badanie MR glowy [...]
>>
>> >To by?o MR, czyli rezonans magnetyczny, nie TK...
>>
>> >Badania dodatkowe nale?y ocenia? w odniesieniu do pacjenta. Owszem,
>> >móg?bym co? napisa?, ale osob? kompetentn? jest tu lekarz prowadz?cy i
>> >jemu nale?y w pierwszej kolejno?ci zadawa? te pytania.
>>
>> >Lekarze s? równie? po to, ?eby ich pyta?. Nie bój si? tego.
>>
>> Wiesz Marku, pytalem, ale cos czuje ze nie do konca mi mowi moj lekarz
>> (nawet juz kumpel) prawde. Nie mowi wszystko, a po jakims czasie lub
>> gdy na sile wyciagam od niego odpowiedz na pewne pytania to mowi
>> wiecej lub jak jest dokladnie.
>>
>>
>>
>>
>>
>> >m.- Ukryj cytowany tekst -
>>
>> - Poka? cytowany tekst -- Ukryj cytowany tekst -
>>
>> - Poka? cytowany tekst -- Ukryj cytowany tekst -
>>
>> - Poka? cytowany tekst -
>
>WITAM
>
>Poszukuje PILNIE osoby, ktora zazywa lub zazywala lek
>przeciwpadaczkowy TRILEPTAL.
>Mam 28 lat i wlasnie zazywam ten lek od kilku lat.
>Obecnie mam problem z dostepnoscia tego leku.
>Prosze o kontakt osoby, ktore sa w posiadaniu tego leku i nie musza go
>juz zazywac.
>Pozdrawiam,
>AM

Hey,
Zazywalem Trileptal jakis czas temu, niestety nie moge Tobie pomoc,
gdyz lekarz wiedzac ze bedzie mi odstawial to nie zapisywal mi
kolejnych.
Sprobuj w innych aptekach albo moga zamowic. Z pewnoscia nie bedziesz
miala problemu z tym.
Zycze powodzenia w wyzdrowieniu oraz dostaniu wreszcie tego leku.

Pozdrawiam

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13. Data: 2007-05-08 17:14:28

Temat: Re: Gabitril
Od: Angels <m...@d...op.pl> szukaj wiadomości tego autora

On Sun, 6 May 2007 20:12:34 +0200, Marek Bieniek
<a...@s...re.invalid> wrote:

>On Sun, 06 May 2007 15:08:31 +0200, Angels wrote:
>
>> Kiedy mialem 6.5 roku i 10 h i brak bylo pracy serca i krazenia,
>> oddechu, nastepnie mialem 2-3 ataki w ciagu ok 5 lat (nie wiem czy
>> przez zle dobrane leki czy jak. Bralem kwas walproinowy ktory nie
>> dzialal, a teraz dziala- wiec czy wtedy byl zle dobrany lek czy inny
>> powod, przyczyna?).
>
>Padaczka potrafi ewoluowa?, lekowra?liwo?? mo?e si? te? zmienia? z
>czasem.
>S? te? takie postaci padaczki, gdzie kwas walproinowy nie dzia?a a
>priori.
Jest jednak mozliwosc ze kiedys kwas walproinowy nie dzialal a teraz
dziala? Mozna to tlumaczyc tym ewoluowaniem? (co dokladniej masz na
mysli piszac to?) Czy u mnie wg Ciebie moze byc wlasnie tak ze ten
kwas nie dziala?
>
>> [...] A na moj typ epi.? I w takim razie po moim opisie czy
>> mozna stwierdzic ze jest ona wyleczalna czy nie?
>
>Moim zdaniem nie mo?na tego stwierdzi? na tej podstawie, a na pewno nie
>podejm? si? tego ja. Zreszt? poza mo?e jednym typem padaczki dzieci?cej,
>w którym rokowanie zawsze jest dobre, nikt rozs?dny nie podejmie si?
>takich spekulacji.
>
Slyszalem ze im wczesniej sie dostanie padaczki tym wieksze szanse
wyjscia z tej choroby. Mam racje? A sa postacie padaczki ktore sa
wyleczalne lub w ktorych jakis czas nie trzeba brac leki? A moze
wlasnie mimo wszystko nigdy sie nawet czesciowo nie wstrzymuje brania
lekow?
>>>Stan padaczkowy stanowi zagro?enie ?ycia, w jego przebiegu mo?e doj?? na
>>>przyk?ad do bezdechu - a cz?owiek, który si? dusi, psuje si? ca?y...
>> A jak wtedy (w wieku 6,5 roku gdy te 10 godz byl brak pracy serca itd)
>> i nastapil zanik (nie pamietam lewej czy prawej) czesci mozgu, to moze
>> miec lub ma jakies teraz objawy to, uszkodzenia w zachowaniu itd.? Czy
>> nazwalby Pan to zanikiem czesci mozgu czy jak?
>
>Raczej mianem encefalopatii niedotlenieniowej, ale to kwestia dobrania
>nazewnictwa jedynie.
>
Rozumiem.
>>>> jakie sa skutki zaniku polkuli mozgu?
>>>Ja bym raczej zada? pytanie o przyczyny...
>> A jakie moglyby byc przyczyny ogolnie oraz w moim przypadku? :)
>
>A sk?d ja mam wiedzie?? :)
>
:) Licze i wiem ze sie znasz na tym. A tym bardziej jako lekarz :)
>> Czy gdy w eeg nie ma napadow, to mozna powiedziec o dzialaniu
>> poprawnym lekow czy tez czym by Pan nazwal ta poprawe zapisu?
>
>W EEG z regu?y nie ma napadów, tak?e u chorego na padaczk?, chyba ?e
>zapisze si? EEG w trakcie napadu. Poprawa zapisu EEG ?wiadczy po?rednio
>o w?a?ciwym leczeniu, ale o tym ?wiadczy przede wszystkim efekt
>kliniczny, czyli brak lub zmniejszenie ilo?ci napadów.
>EEG jest tylko badaniem dodatkowym!
>
>>>Lekarze s? równie? po to, ?eby ich pyta?. Nie bój si? tego.
>> Wiesz Marku, pytalem, ale cos czuje ze nie do konca mi mowi moj lekarz
>> (nawet juz kumpel) prawde. Nie mowi wszystko, a po jakims czasie lub
>> gdy na sile wyciagam od niego odpowiedz na pewne pytania to mowi
>> wiecej lub jak jest dokladnie.
>
>To wyci?gaj dalej. On na pewno jest w Twojej sprawie znacznie bardziej
>kompetentn? osob? ni? ja.
>
Wyciagam od niego i od Ciebie :) A widzac jak profesjonalnie
odpisujesz to z pewnoscia jestes tak samo kompetentna osoba :)
>m.
Pozdrawiam Cie,
Angels

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14. Data: 2007-05-08 17:16:15

Temat: Re: Gabitril
Od: Angels <m...@d...op.pl> szukaj wiadomości tego autora

mam jeszcze do Ciebie pytanie. Czy jest mozliwosc lub wiesz o
powiazaniu padaczki z choroba lesniowskiego-crohna (to tez mam)? Jesli
tak to myslisz ze to jest powiklanie chocby przez ten pierwszy napad?
A moze padaczka wplywac na zaostrzenie Morbus Crohn?

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15. Data: 2007-05-08 17:32:41

Temat: Re: Gabitril
Od: Marek Bieniek <a...@s...re.invalid> szukaj wiadomości tego autora

On Tue, 08 May 2007 19:16:15 +0200, Angels wrote:

> mam jeszcze do Ciebie pytanie. Czy jest mozliwosc lub wiesz o
> powiazaniu padaczki z choroba lesniowskiego-crohna (to tez mam)? Jesli
> tak to myslisz ze to jest powiklanie chocby przez ten pierwszy napad?
> A moze padaczka wplywac na zaostrzenie Morbus Crohn?

W tej chwili nie przychodzi mi nic do głowy na temat takiego związku.
Jeśli znajdę chwilę, to poszukam.

m.
--
Pozdrawiam,
Marek Bieniek (mbieniek na epic pl)
Tylko uogólnienia mogą tworzyć naukę, nie pojedyńcze fakty.
/Claude Bernard/

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16. Data: 2007-05-08 17:39:00

Temat: Re: Gabitril
Od: Marek Bieniek <a...@s...re.invalid> szukaj wiadomości tego autora

On Tue, 08 May 2007 19:14:28 +0200, Angels wrote:

> Jest jednak mozliwosc ze kiedys kwas walproinowy nie dzialal a teraz
> dziala? Mozna to tlumaczyc tym ewoluowaniem?

Trudno powiedzieć. Jesli zmienia się charakter napadów / rodzaj zespołu
padaczkowego, to i skuteczność leków może być inna.

> (co dokladniej masz na
> mysli piszac to?)

Nic ponad to, co napisałem:)

> Czy u mnie wg Ciebie moze byc wlasnie tak ze ten
> kwas nie dziala?

Może. Nie mogę mieć pewności.

> Slyszalem ze im wczesniej sie dostanie padaczki tym wieksze szanse
> wyjscia z tej choroby. Mam racje?

Nie bardzo.
Najczęstsze padaczki wczesnodziecięce (zespół Westa, Lennoxa-Gastaut)
rokują raczej źle. Dobrze rokuje na przykład padaczka Rolanda - też o
początku w wieku dziecięcym, ale później.

> A sa postacie padaczki ktore sa
> wyleczalne lub w ktorych jakis czas nie trzeba brac leki?

Nie rozumiem pytania. Padaczka Rolanda na przykład dobrze reaguje na
leki i z reguły ustępuje, ale w Twoim przypadku o takim rozpoznaniu nie
można mówić.

> A moze
> wlasnie mimo wszystko nigdy sie nawet czesciowo nie wstrzymuje brania
> lekow?

Tak jak Ci pisałem - jeśli przez 3 lata nie ma napadów można spróbować
odstawić lek. Jeśli napady powracają, to raczej trzeba się nastawić na
leczenie do końca życia.

> Wyciagam od niego i od Ciebie :) A widzac jak profesjonalnie
> odpisujesz to z pewnoscia jestes tak samo kompetentna osoba :)

Nie jestem, bo nie znam pacjenta.

m.
--
Pozdrawiam,
Marek Bieniek (mbieniek na epic pl)
Zadziwiające jest, że mało dokształcający sie lekarz może praktykować
medycynę, nie dziwi jednak, że robi to źle /Sir William Osler/

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17. Data: 2007-05-10 00:59:57

Temat: Re: Gabitril
Od: Angels <m...@d...op.pl> szukaj wiadomości tego autora

On Tue, 8 May 2007 19:32:41 +0200, Marek Bieniek
<a...@s...re.invalid> wrote:

>On Tue, 08 May 2007 19:16:15 +0200, Angels wrote:
>
>> mam jeszcze do Ciebie pytanie. Czy jest mozliwosc lub wiesz o
>> powiazaniu padaczki z choroba lesniowskiego-crohna (to tez mam)? Jesli
>> tak to myslisz ze to jest powiklanie chocby przez ten pierwszy napad?
>> A moze padaczka wplywac na zaostrzenie Morbus Crohn?
>
>W tej chwili nie przychodzi mi nic do g?owy na temat takiego zwi?zku.
>Je?li znajd? chwil?, to poszukam.
>
>m.
Dziekuje z gory :)

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18. Data: 2007-05-10 01:03:45

Temat: Re: Gabitril
Od: Angels <m...@d...op.pl> szukaj wiadomości tego autora

On Tue, 8 May 2007 19:39:00 +0200, Marek Bieniek
<a...@s...re.invalid> wrote:

>On Tue, 08 May 2007 19:14:28 +0200, Angels wrote:
>
>> Jest jednak mozliwosc ze kiedys kwas walproinowy nie dzialal a teraz
>> dziala? Mozna to tlumaczyc tym ewoluowaniem?
>
>Trudno powiedzie?. Jesli zmienia si? charakter napadów / rodzaj zespo?u
>padaczkowego, to i skuteczno?? leków mo?e by? inna.
>
>> (co dokladniej masz na
>> mysli piszac to?)
>
>Nic ponad to, co napisa?em:)
>
>> Czy u mnie wg Ciebie moze byc wlasnie tak ze ten
>> kwas nie dziala?
>
>Mo?e. Nie mog? mie? pewno?ci.
>
>> Slyszalem ze im wczesniej sie dostanie padaczki tym wieksze szanse
>> wyjscia z tej choroby. Mam racje?
>
>Nie bardzo.
>Najcz?stsze padaczki wczesnodzieci?ce (zespó? Westa, Lennoxa-Gastaut)
>rokuj? raczej ?le. Dobrze rokuje na przyk?ad padaczka Rolanda - te? o
>pocz?tku w wieku dzieci?cym, ale pó?niej.
>
>> A sa postacie padaczki ktore sa
>> wyleczalne lub w ktorych jakis czas nie trzeba brac leki?
>
>Nie rozumiem pytania. Padaczka Rolanda na przyk?ad dobrze reaguje na
>leki i z regu?y ust?puje, ale w Twoim przypadku o takim rozpoznaniu nie
>mo?na mówi?.
>
Czy sa pewne postaci padaczki, ktore pod wplywem leczenia moze ona
calkowicie ustapic? (oprocz tej Rolandycznej)
>> A moze
>> wlasnie mimo wszystko nigdy sie nawet czesciowo nie wstrzymuje brania
>> lekow?
>
>Tak jak Ci pisa?em - je?li przez 3 lata nie ma napadów mo?na spróbowa?
>odstawi? lek. Je?li napady powracaj?, to raczej trzeba si? nastawi? na
>leczenie do ko?ca ?ycia.
>
Dziekuje. Zawsze to wlasnie lepiej wiedziec, niz gdy jakis lekarz co
chwila zmienia zdanie lub roznie mowi.
>> Wyciagam od niego i od Ciebie :) A widzac jak profesjonalnie
>> odpisujesz to z pewnoscia jestes tak samo kompetentna osoba :)
>
>Nie jestem, bo nie znam pacjenta.
>
>m.

Zebym mieszkal tam gdzie Ty to bym Cie w gabinecie odwiedzil jako na
wizyte :)

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19. Data: 2007-05-10 09:30:00

Temat: Re: Gabitril
Od: "Jurek" <m...@o...pl> szukaj wiadomości tego autora

Uzytkownik "Angels" <m...@d...op.pl> napisal w wiadomosci
news:u8nv23hqujgkvqri0sk6v2jif4butq7qr7@4ax.com...
> Hey
> Mam do Was takie pytanie. Szukalem na internecie informacji ale
> spotkalem sie ze sprzecznymi tak jak i podczas rozmow z lekarzami czy
> rowniez tak jak i ja chorymi na epi. Pytanie brzmi: Kiedy dokladnie (w
> jakich typach padaczki) stosuje się gabitril? Oraz czym rózni się
> Gabitril od Lamitryginy lub Oksykarbamazepiny?
>
Poniższe artykuły weź głęboko pod rozwagę. Nawet jeżeli nie skorzystasz z
tych sugestii obecnie, powinnaś wiedzieć gdzie znajdziesz ogromną pomoc w
swoich schorzeniach.
Zaraz na mnie napadnie zgraja oponentów, że ja namawiam do jakiejś sekty...
Ale ja nie namawiam do przystępowania gdziekolwiek, tylko do zmiany
odżywiania.
Pomocna będzie strona www.optymalni.org.pl
Pozdrawiam Jurek M.
>
Padaczka.
Według definicji padaczka (epilepsja) jest choroba ze
skłonnością do występowania napadowej nieprawidłowej aktywności
elektrycznej mózgu, prowadzącej do napadów o różnorodnej postaci
klinicznej, które jednak u danego chorego przebiegają w ten sam sposób.
Przyczyny tego stanu rzeczy często nie udaje się ustalić. Powodem mogą być
pewne zmiany organiczne w mózgu na przykład uraz, proces rozrost
(nowotwór), udar, nagły wzrost ciśnienia tętniczego, anomalie budowy naczyń
mózgowych (naczyniaki), choroby układowe (stwardnienie guzowate, toczeń
itp.). częsta przyczyna SA zaburzenia metaboliczne: hipoglikemia,
hiperglikemia bez kwasicy ketonowej, niedotlenienie, mocznica, nadmierne
nawodnienie organizmu, zaburzenia elektrolitowe, choroby wątroby, alkohol,
leki. Czasami przyczyna padaczki mogą być infekcje ośrodkowego układu
nerwowego.

W obrazie tej choroby opisuje się różne rodzaje napadów.
1. Napady częściowe, które można odnieść do określonej części mózgu,
gdzie jest tzw. ognisko padaczkowe. Wśród tych napadów wyróżniamy: proste,
złożone i uogólniające się.
2. Napady uogólnione, w których nie można odnieść objawów do
określonej części mózgu, a wśród nich napady typu "petit alm." w postaci
krótkotrwałych utrat świadomości, oraz napady typu "grand alm." z pełną
utratą świadomości i z drgawkami.

W zależności od domniemanej przyczyny padaczki i rodzaju napadów stosowane
SA różne metody leczenia i rozmaite leki. Leczenie jest jednak trudne i
często nieskuteczne.

Ponieważ Żywienie Optymalne doprowadza do bardzo dobrego odżywienia mózgu,
to szczególnie w przypadku padaczki o podłożu metabolicznym rokowania są
dobre. Obserwuję grupę pacjentów z padaczką, u których po wprowadzeniu ŻO
albo całkowicie ustąpiły napady, albo są dużo rzadsze. Obserwacja ta u
niektórych pacjentów jest już prowadzona prawie 4 lata (tekst ten jest
przepisywany w listopadzie 2003 roku). Obserwacje dotyczą nie tylko
pacjentów z padaczką samoistną, ale również pacjentów z organicznym podłożem
napadów. Warto wspomnieć o tym, ze podłożem napadów padaczkowych tak
naprawdę zawsze są zaburzenia metaboliczne, związane głównie ze złym
odżywianiem mózgu z powodu stosowania nieodpowiedniej diety, w innych
przypadkach dodatkowym elementem pogarszającym odżywianie mózgu w
określonych obszarach jest blizna, proces rozrostowy (guz, ropień), anomalia
naczyniowe etc. Z tych faktów można wnioskować, ze w każdym przypadku
padaczki niezależnie od jej pochodzenia wprowadzenie Żywienia Optymalnego
powinno przynieść poprawę. To stwierdzanie znajduje potwierdzenie w praktyce
wśród pacjentów znajdujących się pod moja obserwacja.

O rezygnacji z leków nie można niestety myśleć od razu po przystąpieniu do
Żywienia Optymalnego. Okres około 3 lat bez napadów padaczkowych upoważnia
nas dopiero do rozważenia możliwości odstawienia leków, warto wówczas
wykonać kontrolne badanie EEG. Dieta niskoweglowodanowa i bogatotluszczowa
powodująca niewielką ketozę doprowadza do stabilizacji czynności
elektrycznej komórki nerwowej. Była ona już stosowana w leczeniu padaczki w
latach 20-tych XX wieku, a ostatnio przezywa renesans dzięki wprowadzeniu
tej metody ponownie w dobrych amerykańskich ośrodkach epileptologicznych.
Czytają amerykańskie doniesienia na temat doskonałych efektów leczenia
padaczki tzw. dieta ketogenna, znalazłem stwierdzenie, ze podobna dieta
powinna bardzo dobrze wpływać na stan zdrowia osób z różnymi schorzeniami
ośrodkowego układu nerwowego, jak m.in. stwardnienie rozsiane (SM),
stwardnienie zanikowe boczne (SLA).

O tym wiemy już od dawna dzięki dr. Kwaśniewskiemu, który te i inne tzw.
nieuleczalne choroby leczy od prawie 40-tu lat. Dlatego ja moim pacjentom
zalecam wprowadzenie Żywienia Optymalnego i ustalenie takiego poziomu
węglowodanów, który doprowadzi do niewielkiej ketozy. Zgodnie ze znana
proporcja B T W czyli B-1, T-3,5 lub więcej i W-0,5 - ponieważ w padaczce
0,8 mogłoby być za dużo. Nie należy za wszelka cenę poszukiwać ciał
ketonowych w moczu, jeżeli przy poziomie około 40 g węglowodanów na dobę
dla osoby doroślej, nie obserwuje się ciał ketonowych w moczu, nie ma
konieczności dalszego zmniejszania ilości węglowodanów.

W zasadzie odpowiednia ilością węglowodanów dla osób chorujących na padaczkę
powinno się ustalić indywidualnie dla każdej z nich. Warto dodatkowo włączyć
do jedzenia móżdżek w ilości 100 - 150 g tygodniowo, w okresie ok. 3
miesięcy, potem rzadziej, np. raz w miesiącu. W leczeniu padaczki unikam
prądów selektywnych., gdyż przede wszystkim samo żywienie powoduje
ustępowanie choroby, a ryzyko wystąpienia napadu w czasie zabiegu jest zbyt
duże. Natomiast w leczeniu wspomnianych wcześniej innych schorzeń układu
nerwowego prądy selektywne SA istotnym elementem leczenia.
Dr n. med. Mariusz Głowacki

>

Uprzejmie proszę o odpowiedź, czy są jakieś szanse na poprawę stanu
zdrowia mojej córki. Ma ona obecnie 28 lat. Od wielu lat stosowała dietę
wegetariańską. Podczas studiów, w wieku 21 lat, zachorowała na chorobę
Leśniewskiego-Crohna. Choroba postępowała bardzo szybko, a OB. Było zawsze
powyżej 160. Wycięto jej 40 cm jelita.
Przez następne 7 lat przebywała długie miesiące w wielu klinikach w
łodzi, Krakowie, Warszawie, Wrocławiu. Poprawy stanu zdrowia nie było.
Następnie rozpoznano u niej ziarnicę złośliwą. Pewna pani profesor
powiedziała, że jest to choroba Castelmana. Dołączyła się skrobiawica,
białko uciekało z moczem, w osierdziu i w opłucnej zbierała się woda. Córka
przez cały czas otrzymywała duże dawki encortonu i innych leków. Obecnie
jej stan zdrowia jest zły i musi być dializowana co drugi dzień.
Byłam u wielu lekarzy i profesorów. Dlaczego żaden z nich nie powiedział,
od czego moje dziecko zachorowało i dlaczego nie można było znaleźć dla niej
skutecznej pomocy? Czy to dieta wegetariańska mogła być przyczyną chorób?
Czy żywienie optymalne mogłoby córce pomóc?

M.K., Kielce

Choroba Leśniewskiego-Crohna jest choroba z autoagresji, a zmiany
wrzodziejąco zapalne dotyczą najczęściej końcowego odcinka jelita cienkiego.
Jest to choroba bardzo ciężka.
Długotrwała choroba z autoagresji prowadzi często do rozwoju skrobiawicy.
W różnych narządach odkłada się wówczas amyloid - białko składające się z
antygenów białkowych wytwarzanych przez chore tkanki i przeciwciał przeciwko
tym antygenom. Gdy amyloid odkłada się w nerkach, dochodzi do niewydolności
nerek i trzeba wówczas stosować dializy.
Przyczyną choroby Leśniewskiego-Crohna jest dieta wegetariańska. Była ona
także przyczyną tej i innych chorób Pani córki.
Na diecie wegetariańskiej można tylko wegetować. Zdrowym być nie można.
Im bardziej niekorzystne jest odżywianie człowieka - tym bardziej
niekorzystna przemiana materii, tym bardziej ograniczone funkcje życiowe
organizmu. Źle odżywiony organizm ogranicza swą pracę do funkcji związanych
z przeżyciem, a nie wystarcza mu wartościowych białek do reperacji
uszkodzonych choroba tkanek i narządów. Zmuszony do korzystania z najmniej
wydajnych "paliw", cierpi na chroniczny brak energii potrzebnej do
utrzymania prawidłowych funkcji poszczególnych tkanek i narządów.
W technice najlepszym paliwem jest wodór, następnie metan, który na 1
cząsteczkę węgla zawiera 4 cząsteczki wodoru (CH4), etan (C2H6), propan
(C3H8), następnie węglowodory o dłuższych łańcuchach. Przejechać 100 km
samochodem można na 2 kg wodoru, 7 kg metanu, 11 kg benzyny, 30 kg węgla i -
na 100 kg węglowodanów.
Dokładnie te same zasady gospodarki energetycznej obowiązują w
organizmach żywych. Najlepszym paliwem dla człowieka jest wodór, pozyskiwany
głównie z tłuszczów. Więcej wodoru można uzyskać z tłuszczów nasyconych niż
nienasyconych, zatem tłuszcze nasycone są lepszym paliwem dla człowieka od
tłuszczów nienasyconych. Najgorszym zaś paliwem są węglowodany - główne
źródło energii dla ludzi na diecie wegetariańskiej.
W szpiku, wątrobie, nerkach, żółtkach, móżdżku, mięśniach zwierząt
występują źródła energii jeszcze lepsze od wodoru. Są to związki fosforowe,
wysokoenergetyczne, działające jak akumulatory. Spożywane w tych tkankach
zwierzęcych przez człowieka poprawiają jego gospodarkę energetyczną.
Główną przyczyną obecnego ciężkiego stanu zdrowia Pani córki są
wielomiesięczne, wielokrotne pobyty w różnych klinikach oraz odżywianie,
jakie w tych klinikach otrzymywała. Najbardziej szkodzi ono chorym na takie
choroby jak choroba Buergera, choroba Bechterewa, gościec przewlekły
postępujący, stwardnienie rozsiane i stwardnienie boczne zanikowe, inne
choroby z autoagresji, w tym choroba Leśniewskiego-Crohna.
W szpitalach i klinikach człowiek chory jest "odżywiany" głównie lekami,
a przecież zachorował on nie dlatego, że nie brał leków, a dlatego, że
zjadał to, czego zjadać nie powinien.
Jeśli cokolwiek może obecnie pomóc Pani córce, to tylko żywienie
optymalne. Jej organizm będzie mógł usunąć amyloid z nerek i, być może, jej
nerki będą mogły podjąć swą funkcję, a dializy okażą się niepotrzebne.
Spotykałem u chorych na skrobiawicę ustąpienie objawów powodowanych przez
odkładanie się amyloidu także w nerkach.
W początkowym okresie diety, w wyniku dużej przebudowy organizmu, może
zwiększyć się wytwarzanie końcowych produktów przemiany białek, takich jak
kreatynina, mocznik czy kwas moczowy. U chorych z niedomogą nerek, ale nie
dializowanych, może to spowodować wzrost poziomu tych związków we krwi. U
chorych dializowanych tego problemu nie ma.
Organizm może zreperować wiele, ale musi mieć stworzone do tego warunki.
Musi mieć dostarczane najbardziej wartościowe białko (najbardziej
biochemicznie podobne do białek organizmu ludzkiego) i najlepszą energię.
Wówczas może znowu wykonywać prace, których musiał zaniechać przy poprzednim
modelu żywienia.
Organizm Pani córki jest silnie wyniszczony, a jego przebudowa i odnowa
musi potrwać długo. Ale zauważalne efekty powinny być widoczne już po 2
tygodniach.

Lek. med. Jan Kwaśniewski

begin 666 Chor. Leśn.-Crohna.doc
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end

› Pokaż wiadomość z nagłówkami

Do góry

20. Data: 2007-05-10 10:40:32

Temat: Re: Gabitril
Od: Marek Bieniek <a...@s...re.invalid> szukaj wiadomości tego autora

On Thu, 10 May 2007 03:03:45 +0200, Angels wrote:

> Czy sa pewne postaci padaczki, ktore pod wplywem leczenia moze ona
> calkowicie ustapic? (oprocz tej Rolandycznej)

Zdarza się.

> Zebym mieszkal tam gdzie Ty to bym Cie w gabinecie odwiedzil jako na
> wizyte :)

:) Nie mam gabinetu prywatnego.

m.
--
Pozdrawiam,
Marek Bieniek (mbieniek na epic pl)
Umieranie człowieka jest większym problemem dla osób pozostających
przy życiu, niż dla niego samego. /Tomasz Mann/